I found this poem about love being our salvation (and not) from April. It’s true. Love can’t stop the heartache, but we need it to just “keep on keepin’ on.” Today, Burt had no problem letting me go. He called to check when and where we would meet later. Very agreeable. Last night, my early toContinue reading “What does love have to do with it?”
Author Archives: TheRealTamara
A problem in the making?
It’s very likely that this hat rack arrangement will lose its utility soon. It is a convenience, but for Burt, it has become an issue. I knew it might be. He has begun humanizing animation on the TV and identifying with cars on the traffic cam station (FIOS 28). The other day, he asked whoContinue reading “A problem in the making?”
Like a peach
Ok. We’ve entered the clingy era. We’ve been there before but not quite like this. “I want you.” “Stay with me.” No. It is not gratifying. I would welcome his independence. I most certainly crave mine. I may have mentioned that I can no longer “reason” that I need my time to stay well forContinue reading “Like a peach”
One thing
It’s never just one thing. We are all of us, those afflicted with Lewy, those caring for them, those without a care in the world, complex human beings. My honey’s fractured brain sees the fractures and dichotomies. He splits them up, breaks us into compartments of good and bad, nice and not nice. For him,Continue reading “One thing”
A new approach?
Whatever I do, he can do better (I believe this is attributable to the musical Annie Get Your Gun). I have mentioned the zig zagging that winds up hi-jacking every narrative. When I think I have a path out of a delusional trip that we’re on, I need to pause. It’s easy to let selfContinue reading “A new approach?”
Cyclin’
Anyone concerned over Burt’s immortal soul should take heart. This morning, he was thanking god. Repeatedly. Mostly for me; I qvell. He was fast asleep before 6 last night and up about 5 this morning. We had an excellent time as he “discovered” we were married. “You’re so nice to me.” He ate well, too.Continue reading “Cyclin’”
Proper (med) regimen
We have Emily Dickenson to thank for the wonderful image that gives hope all this lightness. We can always use some feathers whether we are caregiving or not. It was definitely a better choice when I returned Burt to his morning meds first thing. He has, in consequence, returned to some measure of sharpness. TheContinue reading “Proper (med) regimen”
After his fall
Burt is a recoverer by nature and determination. It’s 11 days since he bruised his knee, and here he is getting approved to go out walking again. Not only that, he’s not screaming in pain over it. In fact, he’s blaming the other leg. How’s he doing? Doing well.
Lewy lou-ie
I can do nothing to make Burt know who I am. I feel like I should be able to force the issue somehow. It is heedless and needless to allow his who-are-you’s to distress me. It’s the disease. Our weekly outings are very exhausting. In the evening, when we get home, he has to askContinue reading “Lewy lou-ie”
this is our life 