The desire to help out is about being able to still be a part of the life we had. It’s natural to want to contribute as you once did. This has been a thread in one of my support groups. It has belatedly turned on that old light bulb (duh). “Aha, that explains why BurtContinue reading “Feeling Useful”
Author Archives: TheRealTamara
Taking it to the streets
We are still scheduled to walk virtually with CaringKind on Oct 19th in CentralPark. You may throw some support to Team Burt here at the link for a fundraising page for sponsorship of our passive walking: https://give.caringkindnyc.org/fundraiser/5610000 Promoting or joining othet walks: The Alzheimer’s Association has walks all across the country. Their Manhattan walk isContinue reading “Taking it to the streets”
Who?
I was going to stop posting or post more discriminately. Then… This morning, Burt was doing his who are you little darling routine. It’s his memory game in which I hear about the other wives and often how badly I treat him. Today, we reconciled. I recounted our many years together. So far, all quiteContinue reading “Who?”
On Repeat
This is our life is getting to be a bit repetitious. We manufacture our own excitement when dealing with Lewy but there’s all that shucking and diving, ducking and jiving. And lots of calls to say again. On Saturday I ignored Burt who did not settle down again last night and listened to 2 ConanContinue reading “On Repeat”
Drama
Who needs the theater when Burt is so dramatic.* His declaration that we’ll all be dead if we go this way or that might (or not) be out of a sincere fear. It is, however, always on cue. Going out is still fraught with lord knows what, but he doesn’t fail at making it anContinue reading “Drama”
This guy
What does love have to do with it?
I found this poem about love being our salvation (and not) from April. It’s true. Love can’t stop the heartache, but we need it to just “keep on keepin’ on.” Today, Burt had no problem letting me go. He called to check when and where we would meet later. Very agreeable. Last night, my early toContinue reading “What does love have to do with it?”
A problem in the making?
It’s very likely that this hat rack arrangement will lose its utility soon. It is a convenience, but for Burt, it has become an issue. I knew it might be. He has begun humanizing animation on the TV and identifying with cars on the traffic cam station (FIOS 28). The other day, he asked whoContinue reading “A problem in the making?”
Like a peach
Ok. We’ve entered the clingy era. We’ve been there before but not quite like this. “I want you.” “Stay with me.” No. It is not gratifying. I would welcome his independence. I most certainly crave mine. I may have mentioned that I can no longer “reason” that I need my time to stay well forContinue reading “Like a peach”
One thing
It’s never just one thing. We are all of us, those afflicted with Lewy, those caring for them, those without a care in the world, complex human beings. My honey’s fractured brain sees the fractures and dichotomies. He splits them up, breaks us into compartments of good and bad, nice and not nice. For him,Continue reading “One thing”
