A poem So much has gone missingAs I mourn your losses andThe loss of you, the loss of Your thoughts, recollections,The loss of who you were orHow you form ideas, come To conclusions. All the lossThat is clear, and all that isAmbiguous, waiting in theWings for the big finale I amSure will tear my heartContinue reading “Time is not the only”
Author Archives: TheRealTamara
Poems of time and remembrance
He told me all his stories, so That when this day came, I’d Be the one who remembered. Love song: if I remember you Is it lost if we mourn it Mourning When he lost the wisdom of his age What feels like the loss That he’s broken and breaking [Like] Lear on the moorContinue reading “Poems of time and remembrance”
In free fall
This is a horrid disease. I believe all dementias are damnable and heartbreaking. Lewy, however, seems to offer behavioral twists and emotional wrenches that make it that much more accursed. So, while all dementias are a burden on sufferer and carer, this is the one we’ve got. Burt has quirks that predate his illness. HeContinue reading “In free fall”
Should’ve
When you came home from a walk and said you were lost on 5th Avenue, I was worried. When you told me you had experienced double vision, I worried again. I should have asked you how you felt. Your worry was unspoken but deeply felt. I should have said I’m worried, but you matter. IfContinue reading “Should’ve”
Aggression
“So,” she asked, trying to put it tactfully. “Is Burt ever, how do I say it, does he lash out?” Oh, yes, that famous Lewy Body aggressivity. It’s why an agency felt they had to deny services. Burt is, as I like to say, performatively belligerent. Of course, he is, but he does lash out.Continue reading “Aggression”
Do as I say…
Out of desperation over difficult mornings, I switched morning meds to early afternoon. I had reservations about this choice but got the approval of his doctors. At the time of my decision, Burt was fighting taking his pills in the a.m. and sleeping late. I needed to get out of the house for my dailyContinue reading “Do as I say…”
Perplexing
T-shirts with slogans have sprung up to agitate my Burt. It seems to have originated with a recently acquired resentment of my gym. I love my logoed gear! Burt told me a wild story about a woman (they always look just like me) who was wearing the shirt (he ran his fingers over the writingContinue reading “Perplexing”
The fall
I pride myself in pulling no punches when I share our day to day. So, how did I really feel when I got the call from the aide. It’s very scary hearing of a fall. “If it were a broken bone or if it required a trip to the ER,” my mind raced with theContinue reading “The fall”
Rx for saving
Not really part of my assignment, but I think this might be helpful. I have had great luck in saving on Burt’s prescriptions with Single Care. It’s an app. Or they will send you a savings card. The dollar amounts have been impressive enough for me to want to pass this on.
Tumble and fall
Burt is okay after taking a tumble this afternoon. He was with his caregiver, who called me and EMS. His aide said he kind of went down as she was trying to make the seat of his walker accessible to him. We got great EMTs whom Burt attacked and abused. They checked him out andContinue reading “Tumble and fall”
